Endometriosis: Getting Taken Seriously and Living With It
A pain diary, scripts for the visit, plain options explained, and a day-to-day plan for flares, work and energy.
By Whole Life HQ4 parts · about 4,400 words · printable · read online
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OpenWho it's for
Women with painful periods or pelvic pain that has been brushed off, or a diagnosis of endometriosis, who want to be heard at the visit and manage day to day.
What you receive
- 4-part guide to endometriosis
- A pain diary and word-for-word scripts for the visit
- Options explained neutrally, with questions about imaging and surgery
- A flare plan, work scripts and a question sheet
4 printable pages, in reading order
- Part 1: What endometriosis is, in plain English
- Part 2: Getting taken seriously
- Part 3: Your options, explained neutrally
- Part 4: Living with it day to day
See inside
The first 4 pages, as they print.
Look inside
The first page, word for word. 4 printable pages in total.
Part 1: What endometriosis is, in plain English
Endometriosis is a long-term condition that causes pain and other symptoms for many people. It is also one of the most overlooked. Many people hear "bad periods are normal" for years before anyone looks closer. This guide explains what endometriosis is, how to get your symptoms taken seriously, what options exist, and how to live day to day with it. It is education, not medical advice. Your own doctor needs to guide your care.
The basics
Endometriosis happens when tissue similar to the lining of the uterus grows in places outside the uterus. Common spots include the ovaries, the fallopian tubes, the lining of the pelvis, and the surfaces behind and around the uterus. Less often it involves the bowel or bladder. Rarely it is found elsewhere.
This tissue responds to your hormonal cycle, much like the uterine lining does. It can thicken and break down each month. But unlike a period, it has nowhere to go. That can lead to inflammation, irritation, and in some people scar tissue (called adhesions) that can make organs stick together.
What is in each part
- What endometriosis is, in plain English
- Getting taken seriously
- Your options, explained neutrally
- Living with it day to day
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Downloads included
4 printable pages: see the list
- Part 1: What endometriosis is, in plain English
- Part 2: Getting taken seriously
- Part 3: Your options, explained neutrally
- Part 4: Living with it day to day
They open in your library, and you can print them, once they are yours.
Who wrote it
Written by the Whole Life HQ team.
Not yet reviewed by an outside expert.
We plan to ask a women's health clinician to review it. Until then it is general information, not professional advice.
General information, not medical advice. Talk to your doctor before changing your exercise, eating or sleep, or if something worries you. If you are in crisis, call or text 988 (Suicide and Crisis Lifeline). In an emergency call 911.
How you get it
- In your libraryAfter you pay, it is in your library straight away.
- Any devicePhone, tablet or computer. Print it if you like paper.
- Yours to keepIt stays in your account, and you can come back any time.
